Trisomy 13
Alternate Names : Patau syndrome
Treatment
Treatment of children with Trisomy 13 is planned on a case-by-case basis. The type of treatment given depends on the patient's individual condition.
Support Groups
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) -- www.trisomy.org
Prognosis (Expectations)
The syndrome involves multiple abnormalities, many of which are not compatible with life. More than 80% of children with trisomy 13 die in the first month.
Complications
Complications begin almost immediately. Most infants with Trisomy 13 have congenital heart disease. Complications may include: - Breathing difficulty or lack of breathing (apnea)
- Deafness
- Feeding problems
- Heart failure
- Seizures
- Vision problems
Calling Your Health Care Provider
Call for an appointment with your health care provider if you have had a child with Trisomy 13, and you plan to have another child. Genetic counseling can help families understand the condition, the risk of inheriting it, and how to care for the patient.
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