Osler-Weber-Rendu syndrome
Alternate Names : Hereditary hemorrhagic telangiectasia, HHT
Treatment
Treatments include: - Surgery to treat bleeding in some areas
- Electrocautery or laser surgery to treat frequent or heavy nosebleeds
- Endovascular embolization to treat abnormal blood vessels in the brain and other parts of the body
Some patients respond to estrogen therapy, which can reduce bleeding episodes. Avoid taking blood-thinning medications.
Some patients may need to take antibiotics before having dental work or surgery. Ask your doctor what precautions you should take.
Support Groups
HHT Foundation International -- www.hht.org
Prognosis (Expectations)
People with this syndrome can live a completely normal lifespan, depending on the parts of the body where the AVMs are located.
Complications
Calling Your Health Care Provider
Call your health care provider if your child has frequent nose bleeds or other signs of this disease.
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