Ehlers-Danlos syndrome
Treatment
There is no specific cure for Ehlers-Danlos syndrome. Individual problems and symptoms are evaluated and cared for appropriately. Frequently, physical therapy or evaluation by a doctor specializing in rehabilitation medicine is needed.
Prognosis (Expectations)
People with EDS generally have a normal life span. Intelligence is normal.
Those with the rare vascular type of EDS are at significantly increased risk for rupture of a major organ or blood vessel. These individuals, therefore, have a high risk of sudden death.
Complications
Possible complications of Ehlers-Danlos syndrome include: - Chronic joint pain
- Early-onset arthritis
- Failure of surgical wounds to close (or stitches tear out)
- Premature rupture of membranes during pregnancy
- Rupture of major vessels, including a ruptured aortic aneurysm (only in vascular EDS)
- Rupture of a hollow organ such as the uterus or bowel (only in vascular EDS)
- Rupture of the eyeball
Calling Your Health Care Provider
Call for an appointment with your health care provider if you have a family history of Ehlers-Danlos syndrome and you are concerned about your risk or are planning to start a family. Call for an appointment with your health care provider if you or your child have symptoms of EDS.
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