Apert syndrome
Alternate Names : Acrocephalosyndactyly
Treatment
The patient should be evaluated by a multispecialty cranio-facial surgery team at a children's medical center. Treatment consists of surgery to correct abnormal bone growth of the skull, mid-face, and jaw area. A hearing specialist should be consulted if there are hearing problems.
Support Groups
Children's Craniofacial Association -- www.ccakids.com
Prognosis (Expectations)
What to expect will vary from child to child.
Complications
Other birth defects may exist. Each child should be evaluated on an individual basis.
Calling Your Health Care Provider
Call your health care provider if you have a family history of Apert syndrome or you notice your baby's skull is not developing normally.
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